Jaren Gamongan, a two-year-old boy from Apayao, Philippines, has gained attention due to his extraordinary appearance. The boy was born with excessive hair on his face and body, giving him the appearance of a real-life werewolf. His unique condition, known as hypertrichosis, makes him stand out among other children. Despite his appearance, Jaren is described as a happy and playful child.
Jaren's mother, Alma, holds a belief that her pregnancy cravings for wild animals, particularly wild cats, may have contributed to her son's condition. She recalls uncontrollable urges for these exotic dishes during her pregnancy. Alma's neighbors fueled her fears by suggesting a curse related to her cravings. However, medical experts have clarified that there is no scientific evidence linking Alma's diet to Jaren's hypertrichosis.
Upon Jaren's birth, the excessive hair covering his face and body made Alma seek medical advice. Doctors confirmed that Jaren's condition was hypertrichosis, a rare syndrome characterized by excessive hair growth. This diagnosis contradicted Alma's superstitious beliefs, as medical professionals highlighted the genetic nature of the condition rather than any curses or dietary influences.
Hypertrichosis, also known as "Werewolf Syndrome," is a rare condition affecting only 50 to 100 cases worldwide since the Middle Ages. It results from excessive hair growth on the body, affecting both men and women. The causes behind it are not completely understood, but it is believed to be genetic in some cases. Factors like malnutrition, medication, cancer, or autoimmune conditions can also contribute.
Hypertrichosis has no cure, and it can significantly impact individuals' lives, requiring specialized medical attention and treatment options like laser hair removal.
Jaren experiences discomfort due to itchy rashes, especially in warm weather. His family faces challenges in managing his condition, including the constant need to trim his hair, which grows back thicker each time. Despite their efforts, they struggle to alleviate Jaren's discomfort completely. It's a source of worry and stress for the family, especially for Alma, who blames herself for Jaren's condition.
Alma, Jaren's mother, worries about him facing bullying and difficulties because of how he looks. She's concerned about him going to school and how others might treat him differently because of his appearance. Alma feels guilty about her cravings during pregnancy and fears that Jaren might suffer because of them. She wants to protect him from any potential harm or discrimination he might face.
Laser hair removal is suggested as a way to help manage Jaren's condition. However, it's expensive, and Alma is worried about the cost. Each session can be quite pricey, and the family might struggle to afford it. Alma reaches out for help from kind-hearted individuals who might be able to support them financially. She hopes that with support, Jaren can undergo the necessary treatment and have a better quality of life.
Alma is hopeful that Jaren will have a better future, despite the challenges they are facing. She believes that with the support of others, they can overcome the challenges posed by his condition. Alma is grateful for those who have already helped them and hopes that more people will provide a helping hand. She dreams of Jaren living a happy and fulfilling life, free from the burdens of his condition, and is determined to do everything she can to make that happen.
(Input from various resources)
(Rehash/Susmita Bhandary/MSM)